Friday, February 25, 2011

Did ya miss me?

Not so much? Ok, fine. :) Well, I have missed blogging and I have missed all of you! We finally got our Internet set up after two weeks of complete craziness. No offense to anyone who works for Verizon, but their customer service SUCKS. I'm not even going to get into it, because it's over now, but we are going to be one of "those" people and probably write a letter. I really was lost without the Internet, mostly the blogging aspect of it. It was really hard not to be able to keep up with all of you and to express myself in this "form." I have to say though that I realized how much time I do spend blogging and on the Internet in general. Without it I did get a lot more done, went to bed earlier, and put myself first. Which was nice, but overall the positive effects on me from blogging are greater than more sleep or getting more stuff done. Might sound odd to some people, I guess.

The move went well. We are loving our new place, but we realized it's going to take a few more months before our financial situation turns around. Right now we are playing "catch up." And it's been really tough. But we'll get through it, we always do. We are hoping by summer to be "comfortable" again.

I wish in my blogging absence that I could have come back and posted something like " We're pregnant...with twins...and we won the NYS lottery." But because that would be ridiculously awesome, that of course did not happen. Before we moved I had just taken Clomid and went in for a monitoring appt. After the RE telling me that I had "no measurable follies" yet, I knew that wasn't a good sign. So we made the decision to stop monitoring and just see what happens. We didn't want to spend money on co-pays, and "waste" our trigger shot and IUI on a crappy Clomid cycle. I've never responded great to Clomid. But we were going to give it one more try. Earlier this week I started getting some moderate to severe cramping and was pissed. I thought there was a chance I was getting my period TWICE in one month. I know the cramps could be from lots of things, but unfortunately IF has taught me to think the worse. Technically, AF is due the middle of next week, but I definitely thought she was being an overachiever and showing up too soon. It could be from anything, as the cramps haven't been consistent. I guess I should make use of that one digital test chilling under our bathroom sink. Maybe next week I'll POAS. Maybe. If we need a next treatment, it's going to be a half-ass injectible cycle again. But I responded well to the half-ass injectible cycle the first time. So, we'll see. It made me sick though to think about how if we started another one of those cycles, I'd have to be monitored about every other day. Which means $200 in co-pays over two weeks. Yikes. May not sound hefty to some people, but it is to us! Lately, I've been thinking of doing an IVF fundraiser someday. I would definitely do it for Adoption, but is it tacky to do for IVF??

Today was a winter wipe-out here in NY. I expected to wake up to a "dusting" (as the weather peeps stated) but instead we woke up to the North Pole. Holy snow. I am not one to really complain about snow, because I love it. But this is just out of control now. I'm seriously afraid this winter might not end. We had a day last week where it was in the 50's and then WHAM...snowball fight! Snow-1,432 People-O. My husband called me before I left and begged me to call in to work, because the roads were awful. But I headed in anyways, and was sorry I did. It was probably the worst ride in the snow I've ever had. And now we live further away from my work, so that made it extra scary. I think I was having an anxiety attack on my way in with all the chest pains I was having. Luckily, my hubby picked me up from work at the end of the day so I didn't have to drive home in it. Love my hero :)

Once we were home I was so ready to just relax. But after checking the mail, my chest pains returned. A few days ago I received a letter from my GI dr saying that I did NOT have Celiac Disease, which was wonderful news! But today I received another letter from them stating that my bloodwork is consistent with Crohn's Disease. HUH???!!! I so need a new doctor. He originally told me I didn't have it. And then the letter said that I should continue with my meds (lialda) and to keep my appt for March. Well at my last visit, he took me off the $50.00 a pop Lialda and put me on a stomach spasm med. This new med has helped a lot I think. But I am so confused and annoyed as to how I'm supposed to treat Crohn's. I'm pretty much terrified because I seem to have this constant feeling that NONE of my doctors know what they're talking about. The only thing I can do is to call the office on Monday and ask what HECK is going on!

Tomorrow I am having lunch with my mom and doing some shopping with gift cards. It'll be nice to spend some time with her. I am slowly catching up on all your blogs!! I promise to comment on them soon!! It's strange how much can happen when you're gone for two weeks. People getting pregnant :) People losing babies :( People happy :) People sad :( So many ups and downs, but I'm glad to be back. Back with my support group...

4 comments:

Marissa said...

I love modern medicine, but it really is amazing how much doctors just *do not know*. I hope things get figured out for you soon!!!

Welcome back. :)

allison said...

Well, let me know if you need to talk about the Crohn's. However, just remember (from everything I know) that blood work is not the final determination of Crohn's or not. You usually need the colonoscopy and biopsy for that.

I get to have an endoscopy, colonoscopy, and a CT Scan (an awful type which I won't explain on here) in over the next few weeks. Yuck!!!!

Moe said...

wow...that's a ton going on. Seriously. So sorry you had to drive through all that gross weather. I hate that. I truly feel you on the money situation. And I don't think that it's tacky to raise money for an IVF session.

Sorry to hear that now they think you might have crohns again. :( when dan was trying to get diagnosed with it the doctors took about forever and a day to decide that's what he had. hopefully they figure it out soon...and hopefully crohn's isn't it!!!

hugs!!!!

Amanda said...

I'm glad to hear you're settled now, and your internet is finally up and working?

Just a thought...is it possible that cramping you were feeling was from ovulation? How long after you appointment did you feel the cramping? You never know....fingers crossed for you!

I hear ya about the snow. Enough already!