So, I realized that I've written about Samantha's hemangioma before but I have never posted pictures of it. It's quite shocking when you first lay eyes on it. She's such a little baby and then there's this huge bump on her neck! My poor girl. We are in the process of getting an appointment scheduled with one of the top hemangioma specialists in the country. He is in Boston. So we will be taking a little road trip come October or November to go see him. Boston is only about three hours from us. Since our insurance agreed to cover it, we thought why not go get a third opinion about it. Awhile back her hemangioma (which I've nicknamed "Hattie") was ulcerating which basically means it was bleeding and causing her discomfort. It's actually looking a lot better now, believe it or not. But it is still HUGE...
We are most likely going to wait and hope it heals on it's own. They usually do by age one. However, there are other options such as a (blood pressure) med, laser, steroids and surgery. None of those sound appealing to us. I'm so torn about it though. On one hand, we are not that concerned with the cosmetic aspect of it. But in case it doesn't go away for years, I don't want our girl feeling uncomfortable about OR getting teased. Which, my husband said he would have to kill someone if they picked on her about it! And I believe him. I just don't want her saying to us in a few years "Why didn't you guys get this taken care of when I was too little to know the difference?" I'm also not crazy about the BP med that could help it shrink. She would have to be monitored for a few days in the hospital to make sure the meds didn't do anything crazy to her. However, I do have a few friends whose kids are on this med and they are fine! The doctors aren't crazy about steroids or surgery. Our main concern, is that it is going to start ulcerating again and causing her pain. Which was completely heartbreaking last time because she would SCREAM anytime we picked her up, got her dressed or bathed her. And also (in my crazy head) I am worried about the hemangioma growing deeper and wrapping around her spinal cord or something crazy like that!!!
I think heading to Boston will help us put our minds at ease about what we should or shouldn't do.
Here are a few pics. Not the greatest and a little blurry, but you'll get the idea! Hattie is huge! And Hattie needs to take a hike! :)